When I had my operation last year I briefly met (the raddest) medical student. In a kind but curious way he asked me, what I thought about the “medical advancement” that was occurring which some think will work to either detect Cerebral Palsy, cure it or lessen its effect.
My answer to him when he asked me this was simple, I said that I will never deny medical advancement, but I will also never deny my worth.
I believe down to the very depths of myself, that my worth, my capacity to contribute to society, my entire self is worthy from a wheelchair. I told him that as far as we may get in terms of advancement
we will always have the presence of disability in some form in our society; you cannot deny that.
I don’t want to spend the next few hundred words talking specifically about disability in terms of medical advancement, because if I am honest; it hurts. It hurts me to think that people would rather travel far and wide in search of being fixed, than be like me; in a wheelchair
Now, before you ask me if I have done my research into this medical advancement and also before you say to me that I should not be hurt, because people’s individual choices don’t effect me personally.
Let me just jump on in and tell you, that yes I have done my research I know about the advancements out there, specifically one surgery and I know that it is not designed to “cure” as such. And also, when I say I am hurt, I am not speaking from an entirely personal point of view.
I respect that people have their own choices, you do you. If you feel like medical advancement is your calling card then ring up a brother and say hello. More power to you.
However, it hurts me in the sense that I have concrete knowledge that there are people and families, who don’t realise or don’t want to realise – how rad life can be when you just accept your reality, it also really ticks me off when people try and tell me, that because I accept and love my life (with a disability) I am the minority.
Like bro, hell no.
So, That is what I want to discuss with you all. Let’s start with the ‘bro hell no’ portion shall we. One time the other week, someone said to me and my mum that we should look up a Spanish experimental therapy for Cerebral Palsy.
A) when I go Spain Imma spend my time eating Spanish food and drinking Spanish coffee. Not in therapy.
B) Where do you get off telling me what I should and shouldn’t do. Would you go up to someone you barely know on the street and say,
“hey love ya looking a bit chubby have you heard of Weight Watches” no. No you wouldn’t. That’d be rude. But that is basically what you did to me, if you replace chubby with disabled and weight watches with Spanish therapy.
What can you learn from this? Nobody has the right to deny you of your worth, sometimes people think they’re helping or saying something worth saying, but they’re in fact not.
People say stupid things basically and everyone will experience this in some way – but if you have enough confidence and belief in yourself you will know what is truth and what is stupid. People will try and deny you, belittle you; don’t let them and always know that most people always say things with their heart in the right place, sometimes it can just come across stupid – but it wasn’t intended to be that way.
The next thing you can learn from this is to accept reality. I am not going to sugar coat it, disability is hard; but I mean really, everything is hard. Nothing is easy at the very beginning but after a while you get used to it; you learn to cook, drive, write, read all of these things you can now do easily, you once found difficult – or did know how to do it.
This is the same for me, disability is my reality so it may seem hard; but it is my normal. It is a reality that I love and have accepted.
You can learn to do the same, accept your reality. Adapt and change what you can to make it the best it can be.
But, don’t try and change what is truth, concrete. Trust me you will get no satisfaction or reward, from trying to change the unchangeable.
You’re rad, believe that.
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